My Journey with Subclinical Hypothyroidism: What I Wish I'd Known
I've been on a wild ride since discovering I had subclinical hypothyroidism. At first, I thought getting diagnosed was the solution to all my problems, but it turned out to be just the beginning. In this review, I'll share my story and the lessons I've learned along the way.
I've always been a bit of a health enthusiast, so when I stumbled upon a YouTube channel by a popular nutritionist two years ago, I was hooked. I started learning more about nutrition and decided to take the first step and get a check-up.
I ran a whole list of tests, including a thyroid panel, because I was curious to see the results of the iron levels, as I suspected I might have a deficiency. To my surprise, my vitamin and mineral levels were pretty good, but my thyroid was being a bit stubborn.
After getting my results, I was diagnosed with subclinical hypothyroidism. I thought I'd finally found the answer to all my health problems, but things didn't quite go as planned. My doctors prescribed me Euthyrox, a medication to treat hypothyroidism, but I soon realized that it wasn't working for me. In fact, it made my symptoms worse.
Despite my concerns, my doctors continued to prescribe me medication, and I started to feel like I was just going through the motions. I was taking medication, but I wasn't getting any better. It wasn't until I stopped taking the medication that I started to feel like myself again.
Looking back, I wish I'd known more about thyroid health and how to manage my symptoms. I wish I'd been more proactive in my care and had sought out a second opinion when things weren't working out. But, as they say, 'when life gives you lemons, make lemonade.'
I've learned a lot from my experience, and I'm determined to share my knowledge with others. If you're struggling with thyroid issues, I hope my story can help you navigate the system and find the right treatment for you.
One thing that really gets my blood boiling is when doctors only look at TSH levels. And let's be real, TSH levels are not always informative. With this cost-cutting approach, you can miss a serious illness or start treating it the wrong way.
After consulting a doctor, I was diagnosed with hypothyroidism on the background of autoimmune thyroiditis, with my thyroid gland appearing uniform on the ultrasound. My doctors told me that antibodies don't cure the condition, and when they're present in large quantities, they can actually cause further damage to the thyroid gland.
I went to see a gynecologist-endocrinologist after I started experiencing some issues with my hormones after taking thyroxine. She told me that my TSH levels were slightly elevated, but that I'd lose weight on thyroxine, so I didn't need to do anything. I was thrilled to have found a good doctor, but she didn't even order any tests for my sex hormones, despite the fact that my problems were pretty serious.
The next doctor I saw was a young endocrinologist who actually took my health seriously. I asked her to order some tests for me through my insurance, and if she hadn't mentioned it herself, she wouldn't have even remembered that I had thyroid issues that needed to be monitored.
After deciding to send my results to another lab for comparison, I was curious to see how much of a difference it would make. The units of measurement are the same in Invitro, but the reference values are different. This is because the equipment in each lab is set up differently. So, it's really important to focus on the positioning of the result relative to the reference, rather than the actual number.
I met with an endocrinologist who's been practicing for 34 years. She was very gentle and persuasive in convincing me to take hormones. I warned her about my previous negative experience, but she had an explanation that had nothing to do with the medication. She also pointed out that the doctor who prescribed it didn't follow Ministry of Health guidelines, which recommend keeping TSH levels below 3.
I've come up with two possible theories: I might be less sensitive to thyroid hormones, or maybe I just need more thyroid hormones. This can happen in response to chronic stress, or possibly during periods of under-eating, when your body needs to tap into stored fat for energy, and you're dealing with anemia, which requires increased cellular respiration.
I've started paying attention to whether my extremities get cold. As a thin person, I tend to freeze in chilly environments, but now I work from home where it's warm and cozy. Even when it's toasty, I've noticed my hands and feet can still get chilly. I used to not even notice it before. And since thyroid hormones are also involved in producing heat, it'd be great to reduce my need for them by getting some external warmth.
I've started using sedative herbs, starting with valerian root. I've been brewing tea an hour before bed and taking tablets throughout the day. While I didn't feel super relaxed, I did notice some side effects, like short-term memory loss – I kept forgetting to turn off the oven. So, I've reduced my dosage to just taking a tablet before bed.
I've also ordered a specialized heated sock to keep my feet warm while I work. Now, I can just slip my feet in and turn it on. I'm still looking for a good heated hand warmer, though. To be honest, I could just use warm water to warm up my hands and feet, but that's not always convenient.
I've found another great tip to try: taking a 20-30 minute break to relax, ideally clearing my mind completely. It's basically meditation, which is super calming for my nervous system, but honestly, it's hard for me to not think about anything for that long. On the other hand, just lying down is definitely a great idea!
I'm also planning to look into incorporating acupuncture and laser acupressure into my routine, but the course is pretty pricey, so I'm exploring options.
These kinds of recommendations aren't exactly long-term solutions, of course. The activities I've been doing are convincing my body that it doesn't need as many thyroid hormones, giving my thyroid gland a break.
As for antibodies, their appearance is a complex issue. High TSH levels can affect their increase, and there are theories that suggest increased gut permeability and gluten might be at play. I do have issues with fat absorption due to my curved gallbladder, and chronic gastritis, which disrupts my gut microbiome, allowing certain molecules to enter my bloodstream. My immune system reacts to these foreign molecules, leading to its malfunction. Gluten, being a protein similar to thyroid tissue, is another factor to consider when dealing with antibodies.
I've started to eat breakfast, which I know sounds crazy, but I'd gone seven years without eating breakfast, just because I didn't feel like it in the morning. But I've managed to develop a habit, and now I couldn't imagine starting my day without it. I used to get by on coffee and water until lunchtime, which was usually around 12 pm. And sometimes even later.
I strongly recommend getting your thyroid hormone levels checked, and not just looking at individual readings, but the entire panel. If you do find any abnormalities, it's worth exploring your body to figure out what's causing the issue specifically. Unfortunately, doctors tend to take a one-size-fits-all approach.
Without exaggeration, getting hormone therapy was a game-changer for me, dividing my life into 'before' and 'after.' Due to the rapid weight loss, I developed endometriosis. During my appointment with my gynecologist, she also mentioned that rapid weight loss can lead to hyperestrogenism. Realizing that you can lose your health due to incorrect doctor's prescriptions is a heavy burden to carry. I now have a unique phobia.
But, as they say, 'when life gives you lemons, make lemonade.' I've learned to trust myself more than a woman in a white coat. My negative experience also motivated me to research and explore various approaches to recovery. Some of those I've shared in this review.
I'd be more than happy if my review could help someone understand what's going on in their body and how to help themselves.
I was able to figure out the reason behind the weird hormone reaction - elevated macro-TTG levels. It turns out, there was no hypothyroidism at all. The hormone reaction was totally normal.
Recommendations
I strongly recommend getting your thyroid hormone levels checked, and not just looking at individual readings, but the entire panel. If you do find any abnormalities, it's worth exploring your body to figure out what's causing the issue specifically. Unfortunately, doctors tend to take a one-size-fits-all approach.
Without exaggeration, getting hormone therapy was a game-changer for me, dividing my life into 'before' and 'after.' Due to the rapid weight loss, I developed endometriosis. During my appointment with my gynecologist, she also mentioned that rapid weight loss can lead to hyperestrogenism. Realizing that you can lose your health due to incorrect doctor's prescriptions is a heavy burden to carry. I now have a unique phobia.
But, as they say, 'when life gives you lemons, make lemonade.' I've learned to trust myself more than a woman in a white coat. My negative experience also motivated me to research and explore various approaches to recovery. Some of those I've shared in this review.
I'd be more than happy if my review could help someone understand what's going on in their body and how to help themselves.